You have more than likely been told by the hospital that there will be a number of resources to
help you once you take your child home. Unfortunately, the resources are actually fairly limited
and dependent on which state you live in and what type of insurance you have and where you
Some of the things we can suggest or items suggested by other parents:
(this is not a complete list and will be updated)
secondary insurance (in California that is called C.C.S https://dhcs.ca.gov )
fill out a DMV request for a special parking placard
state funded services which include developmental assessments and various therapies.
and gas company https://www1.sce.com/NR/sc3/tm2/PDF/14-746.pdf
favorite outfit in a sealed plastic bag after your child wears it but do not launder it- it will
retain their smell and triggered the sensory memory center in future when opened. Take
photos videos and audio recordings.
organization that takes professional photos of kids with complex medical needs. https://sweetnectarsociety.org
An online Facebook group designed for parents of children with complex medical needs to share experiences, offer or request unused medical supplies, and support one another in day to day life.